Transplant Experience: Liver and Kidney Transplantation
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Transplant Experience
Transplant Experience: Kidney and Liver Transplantation
Transplant Experience: Kidney and Liver Transplantation
Transplantation Organizations
There are many organizations created to meet the needs of transplant recipients and their loved ones. Here is a selection of key information and support sources for your reference.

General Transplant Organizations
Air Care Alliance
1515 East 71st Street, Suite 312
Tulsa, OK 74136
1-888-260-7937
inquires@aircareall.org
www.aircareall.org

The Air Care Alliance is a nationwide league of nonprofit flying organizations whose volunteer pilots are dedicated to community service. Volunteers perform public-benefit flying for many needs including patient transport.


American Society of Multicultural Health and Transplant Professionals
12 River Bend Place
Jackson, MS 39232
1-866-276-4871
www.asmhtp.org

A society that promotes organ and tissue donation and transplantation among minorities, and serves in a national advisory capacity for research and education on these and other health related issues.


American Transplant Association
980 North Michigan Avenue, Suite 1400
Chicago, IL 60611
1-800-494-4527
ata@americantransplant.org
www.americantransplant.org

A nonprofit organization that provides educational services and support for transplant recipients and their families.


Angel Flight
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
1-800-296-1217
angelflight@erols.com
www.angel-flight.org

A nonprofit volunteer air medical transportation organization providing free air transportation for people in need with healthcare problems, and for healthcare agencies, organ procurement organizations, blood banks, and tissue banks.


The National Council on Minority Education in Transplantation (COMET)
P.O. Box 7401
Freeport, NY 11520
physicals1@aol.com
www.transweb.org/comet

COMET's mission is to increase the awareness of the minority community to organ and tissue donation, to serve as the conscience of the transplant process, and to enhance the quality of life in the minority community, as a result of their participation and increased awareness of the transplant system and its benefits to the community.


National Foundation for Transplants
5350 Poplar Avenue, Suite 430
Memphis, TN 38119-3826
1-800-489-3863
info@transplants.org
www.transplants.org

This national, nonprofit organization offers a program of healthcare and financial support services and patient advocacy for transplant candidates, recipients, and their families.


National Institutes of Health (NIH)
www.niaid.nih.gov/publications/transplant/contents.htm

The National Institute of Allergy and Infectious Diseases (NIAID), part of the NIH, takes a comprehensive approach to the biological obstacles confronting transplantation today.


Organ Transplant List Serv
www.faqs.org/faqs/medicine/transplant-faq/part1/

A discussion list for organ transplant recipients and anyone else interested in the issues, experiences, and realities of living with an organ transplant.


The Partnership for Organ Donation
2 Oliver Street
Boston, MA 02109
617-482-5746
info@organ-donation.org
www.transweb.org/partnership

An independent, nonprofit organization, which hopes to help improve the donation process by creating programs to educate, lead, and motivate health professionals and the public.


Transplant Recipients International Organization, Inc. (TRIO)
2100 M Street, NW, #170-353
Washington, DC 20037-1233
1-800-874-6386
info@trioweb.org
www.trioweb.org

TRIO is an independent, nonprofit, international organization committed to improving the quality of life of transplant recipients, candidates, family members, and donor families. TRIO provides support, awareness, education, and advocacy to those involved with organ transplants.


PORTEL
www.transplantregistry.com

Patient Outcomes Registry for Transplant Effects on Life invites you to take part in a quality-of-life survey. There are more than 150 transplant centers participating in this important study supported by Astellas Pharma US, Inc.


TransWeb
The Northern Brewery
1327 Jones Drive, Suite 201
Ann Arbor, MI 48105
734-998-7314
transweb@umich.edu
www.transweb.org

TransWeb is a nonprofit educational resource serving the world transplant community. TransWeb features news and events, real people's experiences, the top 10 myths about donation, a donation quiz, and a reference area.


United Network for Organ Sharing (UNOS)
PO Box 2484
Richmond, VA 23218
1-888-894-6361
www.unos.org

This private, nonprofit, membership organization administers the national Organ Procurement and Transplantation Network (OPTN) and the U.S. Scientific Registry under contracts with the U.S. Department of Health and Human Services.


Kidney Transplant Organizations
American Association of Kidney Patients (AAKP)
3505 East Frontage Road, Suite 315
Tampa, FL 33607-1796
1-800-749-2257
info@aakp.org
www.aakp.org

AAKP is a voluntary patient organization that has been dedicated to helping renal patients and their families deal with the physical, emotional, and social impact of kidney disease for more than 30 years. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances, and assume more normal, productive lives in their communities.


American Kidney Fund (AKF)
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
1-800-638-8299
helpline@akfinc.org
www.kidneyfund.org

AKF provides limited grants to needy dialysis and kidney transplant recipients and living kidney donors to help with the costs of transplantation, medicine, and other treatment needs.


Forum of End Stage Renal Disease (ESRD) Networks
1527 Huguenot Road
Midlothian, VA 23113
804-794-2586
forum@richmond.infi.net
www.esrdnetworks.org

A collaboration of individual ERSD groups with support and advocate benefits to improve the quality of care to people with renal disease.


Renal Info
www.renalinfo.com/us

Renal Info offers information that may help point you in the direction of better kidney health. It also offers personal insights from kidney patients and caregivers, as well as tips from healthcare professional guides.


National Kidney Foundation (NKF)
30 East 33rd Street
New York, NY 10016
800-622-9010
info@kidney.org
www.kidney.org

NKF is a major voluntary health organization that seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals affected by these diseases, and increase the availability of all organs for transplantation.


Liver Transplant Organizations
American Liver Foundation (ALF)
75 Maiden Lane, Site 603
New York, NY 10038
1-800-465-4837
1888-443-7872
info@liverfoundation.org
www.liverfoundation.org

A nonprofit organization promoting liver health and disease prevention. ALF provides research, education and advocacy for those affected by hepatitis and other liver-related diseases.


Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
800-891-0707
hfi@comcast.net
www.hepfi.org

A foundation dedicated to education, awareness, prevention and research support of viral hepatitis for the public, patients, educators, and medical professionals.


Organ Donation Organizations
American Society of Transplantation
15000 Commerce Parkway, Suite C
Mt. Laurel, NJ 08054
856-439-9986
ast@ahint.com
www.a-s-t.org

A society dedicated to research, education, advocacy, and patient education and care in transplantation whose goal is to offer a forum for the dissemination of knowledge, scientific information, and expertise in the field of transplantation.


California Transplant Donor Network
1611 Telegraph Avenue, Suite 600
Oakland, CA 94612
888-570-9400
info@ctdn.org
www.ctdn.org

This donor network serves as an organ and tissue bank for transplant donors and recipients.


Coalition on Donation
700 North Fourth Street
Richmond, VA 23219
804-782-4920
coalition@donatelife.net
www.shareyourlife.org

The Coalition on Donation is a not-for-profit alliance dedicated to educating the public about organ and tissue donation and creating a greater willingness to donate.


Donor Alliance
720 South Colorado Boulevard, Suite 800N
Denver, CO 80246
1-888-868-4747
info@donoralliance.org
www.donoralliance.org

Donor Alliance is a nonprofit organization designated by the Department of Health and Human Services to facilitate the donation and recovery of organs in Colorado and Wyoming. The tissue banking operation is regulated under the FDA. Its primary objectives are to save and enhance the lives of people awaiting transplantation through effective family approach and recovery programs in hospitals.


Indiana Organ Procurement Organization (IOPO)
429 North Pennsylvania Street, Suite 201
Indianapolis, IN 46204
1-888-275-4676
ask@iopo.org
www.iopo.org

A nonprofit agency dedicated to advancing organ, tissue, and eye donation throughout Indiana. In honor of approximately 1,000 Hoosiers who have left a legacy of life by donating their organs, and on behalf of more than 700 Hoosiers who are waiting for a transplant, IOPO provides this information about organ, tissue, and eye donation.


International Society for Heart and Lung Transplantation (ISHLT)
14673 Midway Road, Suite 200
Addison, Texas 75001
972-490-9495
ishlt@ishlt.org
www.ishlt.org

A society dedicated to the science and treatment of end-stage heart and lung diseases


Lifeline of Ohio
770 Kinnear Road, Suite 200
Columbus, OH 43212
1-800-525-5667
www.lifelineofohio.org

A service provider that optimizes the quality and quantity of organs and tissues available for transplantation through the promotion of universal participation in the donation process.


LifeLink Foundation
409 Bayshore Boulevard
Tampa, FL 33606
800-262-5775
813-253-2640
www.lifelinkfound.org

LifeLink Foundation is a nonprofit community service organization dedicated to the recovery of an increasing number of high-quality organs and tissues for transplant therapy. The Foundation attempts to work sensitively, diligently, and compassionately with donor families to facilitate the donation of desperately needed organs and tissues for waiting patients.


LifeNet
5809 Ward Court
Virginia Beach, VA 23455
1-800-847-7831
www.lifenet.org

LifeNet is the largest full-service, nonprofit allograft tissue bank in the United States. This site provides information and helpful resources to donor families, recipients, and healthcare professionals.


The Living Bank
P.O. Box 6725
Houston, TX 77265-6725
1-800-528-2971
info@livingbank.org
www.livingbank.org

A nonprofit organ-donor education organization dedicated to the enhancement of organ and tissue donation and transplantation. The Living Bank is dedicated to increasing the number of registered and informed donors by supporting and facilitating organ donation.


Mid-America Transplant Services (MTS)
1139 Olivette Executive Parkway
St. Louis, MO 63132
314-991-1661
www.mts-stl.org

MTS is a community-based, nonprofit organization dedicated to enhancing the quality of human life for transplant recipients. MTS coordinates the procurement of vital organs, tissues, and eyes in healthcare facilities throughout Eastern and Southern Missouri, Southern Illinois, and northern Arkansas.


National Minority Organ Tissue Transplant Education Program (MOTTEP)
2041 Georgia Avenue, NW
Ambulatory Care Center, Suite 3100
Washington, DC 20060
800-393-2839
www.nationalmottep.org

A national program that aims to decrease the number and rate of ethnic minority Americans needing organ and tissue transplants. MOTTEP implements a national information and education campaign that emphasizes both prevention and intervention strategies


National Transplant Assistance Fund (NTAF)
3475 West Chester Pike, Suite 230
Newtown Square, PA 19073
800-642-8399
ntaf@transplantfund.org
www.transplantfund.org

A nonprofit resource serving all organ and tissue transplant recipients, their families, and the professional community that treats them.


New Mexico Donor Services
2715 Broadbent Parkway NE, Suite J
Albuquerque, NM 87107
1-800-843-7672

New Mexico Donor Services is a nonprofit community-service organization committed to increasing awareness and education of organ and tissue donation among New Mexicans.


Donate Life
www.organdonor.gov

This site, created by the U.S. Health Resources and Services Administration and the Department of Health and Human Services, provides information and resources on organ donation and transplant issues.


United Network for Organ Sharing (UNOS)
PO Box 2484
Richmond, VA 23218
888-894-6361
www.unos.org

This private, nonprofit, membership organization administers the national Organ Procurement and Transplantation Network (OPTN) and the US Scientific Registry under contracts with the U.S. Department of Health and Human Services.




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Last modified: September / 2006